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The Ridiculous Cost of Special Bikes

My local news had a heartbreaking story of a boy with special needs who had his adaptive bicycle stolen the day after Christmas.  The boy’s family had saved up and gotten the bike for their son as a Christmas present and then some asshole steals it the very next day!  The story both broke my heart and pissed me off.

Then, in an amazing act of generosity, a local businessman stepped up and bought the family another new, $1300 bike for the boy who has Cerebral Palsy, Autism and other disabilities.

It seems that there are still good people in this world!

However, the entire story got me thinking (again) about the subject of “special needs bikes.”  My friend Cheryl wrote a post about it not long ago when she was looking for bikes for her daughter, Jillian.

We were looking through catalogs and chatting about it and I never understood WHY they cost so much money.

The boy in the news story above’s bike only cost $1300.00 but, a look through Adaptivemall.com and you can see that bikes made for these precious children can go as high as $4000.00 (FOUR THOUSAND BUCKS!).

I mean….WHY?

Because the seats are shaped different and they have a few extra nylon strap seat belts?  Because they have straps on the peddles to help steady the feet?  Perhaps it’s the extra brake?

I don’t think these are expensive adaptations.

Do you?

Why should a child with cerebral palsy or another physical disability be screwed out of the freedom of riding a shiny red bike?  I can go to WalMart and buy my kids a “regular” bike for $60.00.  Why does a few extra straps cost thousands more?

I’m so happy that this boy will still get his bike.  The generosity of strangers can still be an amazing thing.  While I try not to focus on the fact that the person who stole the bike is a douche, he is probably just another special needs parent who can’t afford to buy his own damn bike.

 

 

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Are You Prepared?

Do you have a family emergency plan?

Last year with the disasters in Japan and a local area-wide power outage, I realized that my family did not have an emergency plan.  We do not have a supply of water or food, we have no first-aid kit.  Nothing.  It’s pretty sad actually.

I started talking to Bob about how we needed to buy emergency foods to have on hand.  I went out and purchased a small thing of bleach in case we needed to sanitize some water.  But other than that?  I didn’t get very far.

*hangs head in shame*

I feel awful that I don’t have an emergency plan.  I just haven’t taken it seriously and I really need to!

FEMA.gov recommends the following items to be in an accessible location.  I’ve even seen suggestions of having more than one kit in multiple locations, especially if you live in a large home or have multiple floors.

Emergency Kit Supplies

  • Water, one gallon of water per person per day for at least three days, for drinking and sanitation Food,
  • at least a three-day supply of non-perishable food (can be purchased from BuyEmergencyFoods.com)
  • Battery-powered or hand crank radio and a NOAA Weather Radio with tone alert and extra batteries for both
  • Flashlight and extra batteries
  • First aid kit
  • Whistle to signal for help
  • Dust mask, to help filter contaminated air and plastic-sheeting and duct tape to shelter-in-place
  • Moist towelettes, garbage bags and plastic ties for personal sanitation
  • Wrench or pliers to turn off utilities
  • Can opener for food (if kit contains canned food)
  • Local maps
  • Prescription medications and glasses
  • Infant formula and diapers
  • Pet food and extra water for your pet
  • Important family documents such as copies of insurance policies, identification and bank account records in a waterproof, portable container
  • Cash or traveler’s checks and change
  • Emergency reference material such as a first aid book or information from www.ready.gov
  • Sleeping bag or warm blanket for each person. Consider additional bedding if you live in a cold-weather climate.
  • Complete change of clothing including a long sleeved shirt, long pants and sturdy shoes. Consider additional clothing if you live in a cold-weather climate.
  • Household chlorine bleach and medicine dropper – When diluted nine parts water to one part bleach, bleach can be used as a disinfectant. Or in an emergency, you can use it to treat water by using 16 drops of regular household liquid bleach per gallon of water. Do not use scented, color safe or bleaches with added cleaners.
  • Fire Extinguisher
  • Matches in a waterproof container
  • Feminine supplies and personal hygiene items
  • Mess kits, paper cups, plates and plastic utensils, paper towels
  • Paper and pencil
  • Books, games, puzzles or other activities for children

The Endless Crafting website has a fabulous emergency preparedness kit that I envy!

 

 

Does your family have an emergency kit? What do you have in it? I really need to get this together before it’s too late!

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What Did You Get For Christmas?

This was a really great Christmas for us!  I know I’ve complained a lot about the trials of starting this new job, but getting that first paycheck on the Thursday before Christmas was a LIFESAVER!  I don’t think I’ve ever had so much fun Christmas shopping having that disposable money to spend and knowing that I wasn’t taking food off of the table just for the sake of some presents.

My kids are very fortunate to have their Grandma who spoils them to bits.  I almost think Grandma’s presents out-shined Santa’s!

Each of the twins got a big Lego set, the LEGO City Fire Stationand the LEGO Police Station .  They’ve been asking for them since last Christmas and they were finally old enough to get them and actually build them mostly on their own.  Anthony’s big gift was a “real” (yet Anthony proof) digital camera, the Fujifilm FinePix XP20 .  This camera is waterproof, dust proof and shock proof.  He had the memory card full and the battery drained on the first day!  I’ll be setting him up his own Flickr account so he can share his pictures, he’s very excited and I’m proud of my little budding photog.

As for me, my mom is good to me, too.  I was able to score a new set of Philosophy skin care (that I sampled at BlogHer and fell in love with yet couldn’t afford to buy refills).  I got a new Ninja (Anthony broke my last one) and a pretty desert stand.

The least favorite gift I received was a nasty head cold.  I feel like crap!  Anyone else get this extra special gift?  ugh.

Of course there is more but instead of boring you with my amazing gifts, I want to hear about yours instead.  What did you get?  What was your favorite present?  Did your kids get anything fabulous??  Please share!

 

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If you need something to make you smile this holiday season, watch this Christmas Flash Mob comprised of a bunch of spunky seniors.  They will warm your heart!

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Wordless Wednesday: Pure Joy

These are from my family’s Christmas party.  Just a reminder about how wonderful Christmas magic is!