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What is With the Stigma Around ADHD?

My son was diagnosed with ADHD by his doctor when he was five years old.  He will be seven next month.  I had a really hard time with the diagnosis.  I cried for him.  I didn’t want him to be different.  I didn’t want him to be labeled.  My sweet, brilliant and full of life boy was going to be looked down upon by people.

Things are rough in my house.  Living with someone with ADHD is noisy and chaotic.  There is constant yelling and fighting.  There are a lot of tears.  From both of us.  The difference between his behavior and his twin brothers behavior is night and day.  Yet ADHD is never mentioned or brought up.

I’ve never even told him that he has this.  He does not know what ADHD is and he certainly doesn’t know he has it.  The term is only whispered by adults.  I don’t even talk about it a lot on my blog since we don’t talk openly about it at home.

But why??  Why is is such a taboo subject?

I googled: Define ADHD

Typically, they have problems with following through on instructions, paying attention appropriately to what they need to attend to, seem not to listen, be disorganized, have poor handwriting, miss details, have trouble starting tasks or with tasks that require planning or long-term effort, appear to be easily distracted, or forgetful.

In addition, some people with add/adhd can be fidgety, verbally impulsive, unable to wait their turn, and act on impulse regardless of consequences {source}

Another:

Watch for constant impulsivity. Acting before thinking is usually a lifestyle for the ADHD sufferer as opposed to a momentary lapse in judgment. Both children and adults with the disorder regularly blurt out answers before the question is finished and have difficulty recognizing what the consequences of their actions will likely be and why. Oftentimes children with ADHD have trouble sharing with other children and are prone to impulses such as hitting and temper tantrums when they don’t get their way {source}

ADHD is a medical condition.  No different than diabetes or cancer.  But when someone has diabetes or cancer, they are not ashamed to talk about it.  They take medicine or other therapies to control it and/or cure it.  While there is no cure for ADHD, I understand many symptoms can be outgrown as a kid gets older.  Today, there are several well-known medications that help children and adults with ADHD.

ADHD is NOT a discipline problem.

I get comments like “when we were kids we just got the shit knocked out of us.  That’s what he needs.”

Um. No.  That’s not what he needs.  When we were kids, our food wasn’t pumped full of chemicals and unpronounceable ingredients.  Ingredients directly linked to ADHD in our children.  You will not convince me that the crap in our food supply isn’t the reason ADHD is an epidemic today.  (Give Anthony a red anything and you’ll see him flip like a switch).

And why do people have to poo-poo on my No Red Dye rule?

Besides that, how many kids who got the shit knocked out of them suffered silently with untreated ADHD?  What if they could have been helped and not beaten?  Maybe there were more kids with ADHD twenty years ago, we just didn’t know it then?

Why do I have to feel embarrassed to say “my son has ADHD.”  Why does anyone care?  And why do I have to resist medicating him if it will help him reach his full potential?  Why do I have to feel bad about that?  There is nothing wrong with taking Advil for a headache…there is nothing wrong with taking antidepressants…there should be nothing wrong with taking a pill to help your focus.

You are not a bad parent because your child happens to have ADHD.  You are only a bad parent if you fail to recognize it and treat it.

Do you have someone in your family diagnosed with ADD/ADHD?  How did you get past feeling ashamed?  What types of therapies do you use to help your loved one?  How did you get past the stigma and just decide to deal with it?

 

 

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Finally Finding Our Groove

Well, it seems I’m finally getting into a groove for this homeschool stuff.  It only took, what?  Five months?  But, really, who’s counting?

I ended up sending the K12 curriculum back.  It followed a very structured curriculum and it just stressed me out trying to keep up.  When your kid is ADHD and he is all over the place, the last thing you need is a computer program telling you what to do and when to do it  (I have a husband for that).  It was structured, seemed to cover all the bases and I had a teacher contact offering a lot of support.  So you might like it if that’s what you need.

We needed something that would keep him interested and keep me from freaking the freak out (Victorious, much?).

I was recommended to try out Time for Learning and so far, we both really like it!

The program is not free (K12 is), we pay a subscription fee of $19.99 a month.  But the lessons are really engaging and keep Anthony’s attention pretty well.  T4L even has parent forums (that I have not used) for support.  You go at your own pace and can jump around to what is interesting at the moment.  It marks off the lessons when they are complete so you don’t get confused as to where you are and the parent can print out reports periodically to keep as hard records.

Unfortunately, we had about 3 months that we didn’t pay our subscription.  The holidays came along and we were just poor.  I thought I could do the schooling thing on my own.  But that just paved the way for mommy to be LAZY.  We worked on a few projects, went to the Library, practiced some reading.  But that was really it.  Then I told myself I was “unschooling.”  HA.  It was just momma being being a bad teacher.

Homeschooling truly is a learning process, for both of us.  I am trying to figure out where the resources are and trying to keep myself on task (perhaps I have a little bit of ADHD myself?).  I really hope we can get our second car running so that we can get out into the world to explore things like Museums and parks and homeschool playgroups.  That would go a long way in helping mommy keep her sanity.

Just yesterday it really dawned on me that the little boys will be old enough for Kindergarten this Fall.  That will be a whole new can of worms!  Can I do this X3?  Eek!

PS:  I was not asked to talk about Time for Learning, but if you decided to try it out and sign up, tell them that Rhea Tabler sent you!  I’ll get a free month.  Woohoo!

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Eliminating Artificial Colors

It seems a never ending quest to find a treatment plan for Anthony’s ADHD that doesn’t include medicating him.  We tried going the organic food only route with some success, but unfortunately, finances just don’t allow us to shop 100% organic.  I can’t say that all organic really helped with Anthony’s symptoms though.  He may have chilled a little, but it wasn’t a huge eye-popping difference where we could say “YAY!”

I have successfully eliminated most processed foods and try to cook as much from scratch as possible.  I just wish the boys liked the “Canadian” Mac & Cheese recipe as much as I do!  {I only refer to it as “Canadian” because it’s my friend Cheryl’s recipe and she lives in Canada…it’s not some special Canadian blend of noodles or anything}

So now I am on to experiment #2:

Eliminating Red Food Dye

Reactions [to red #40] include temper tantrums, hyperactivity, aggressive behavior, uncontrollable crying and screaming, kicking, nervousness, dizziness, inability to concentrate and sit still among other findings. Physically you may get frequent headaches or migraines, upset stomach and feel ill after ingesting this additive. Often when Red 40 is eliminated from the child’s diet a remarkable change is noticed immediately.  (Credit: associatedcontent.com)

That’s what I’m talking about!

Eliminating red food coloring is not going to be easy.  It is in everything.  It is really pretty disgusting if you think about it.  Why do we allow them to put all these preservatives and artificial shit in our children’s food!?  Food does not need Red #40.  They put it in there to make it “pretty” and so that children will want to eat it.  And, did you also know that Red #40 is made out of coal?  Nice.

Last night I started going through and reading the labels on stuff in my pantry.  It sucked that there was red dye in my kids’ chewable pain medicine.  But other than that, I have not found a lot in my pantry with red colors.  Go me!  It will suck the first time we stop at 7-11 and he begs for a cherry slurpee though.

Amanda has had good luck finding red dye alternatives for her kids, what about you?  Have you tried eliminating any of the food dye’s from your children’s diets?  Did you see any difference?  I’m really interested to see how this works.

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Is This Being a Terrible Mother?

There is a little boy who lives next door.  His age is directly in between Anthony and the Brothers, he’s 5.  He’s a tiny little thing, and it’s funny to see him and Anthony together since Anthony towers over him by a foot.  But Anthony is real fond of him and it’s a daily ritual to ask permission to go next door or have his friend come over here.

His parents are young but seem nice enough.  Anthony comes home with new phrases and words that he claims he learns from the dad (things like “aw, my nuts!” and “pecker”).  So I’ve questioned to myself whether he should even spend so much time next door.  But he is Anthony’s only friend (besides family) and I don’t want to discourage him from developing this relationship.

Today, the little boy came over.  Right away they were scuffling and tattling on each other (mostly between the little friend and the Brothers).  I know this is normal with kids so it wasn’t a big deal, just annoying to have it start right away.  And then Anthony had me talked into letting his friend sleep over.  I wasn’t thrilled, but the neighbors have Anthony next door a lot so I figured it would be okay.

Anthony talks.  He talks a lot.  Quite frankly, unless he’s asleep, I don’t think he ever shuts up.  But he generally means well and is kind hearted.  Today the friend was trying to put together a Bionicle and Anthony was trying to give him instruction.  He kept telling Anthony to stop talking.  He kept saying “I know, I know, I know, don’t you ever stop talking!?”  “Why don’t you ever shut up?!”  “You just never stop talking!!”

I couldn’t listen to it anymore.  My heart was hurting hearing the way his friend was yelling at him.

Now, I know kids say hateful things.  I’m not so stupid to think otherwise.  But this little punk kid was being downright mean to my child, in my home.  So I sent him home.

Oh, my gosh.  The drama that ensued!  Anthony started wailing and crying and screaming  “I’M SO MAD AT YOU MOM!”  He told me how horrible I was for sending his friend home.  He wanted nothing more than to have his friend stay for a sleepover, “mom, you promised!”

I tried to explain.  I told him I wouldn’t allow his “friend” to be so hateful.  I asked him, “didn’t it hurt your feelings?”  I told him that it certainly hurt my feelings.  I told him if he was the one speaking to his friend like that then I would have done the same thing.  I don’t let him talk to his brothers like that without consequences either.  Anthony told me he did have he feelings hurt, but he didn’t care.  He wanted his friend to stay.  He said “it’s okay, mom.”

Um.  I don’t think it was okay.

So, did I handle this appropriately?  Did I overreact?  Would you have sent him home?  Would you rather your child tolerate belittlement for the sake of keeping a friend?  Was this just a case of kids being kids?

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Having an ADHD Kid is Like Living a Groundhog Day

You know what movie I’m talking about, right?  The one with Bill Murray and he keeps reliving the same day over and over again?  Well, my life has turned into a Groundhog Day.  It’s the same thing over and over and over and over again…

Don’t do that!

Stop touching that!

Why did you break that?

Don’t do that!

Be nice to your brother.

Leave your brothers alone!

Leave your brothers alone!

Stop touching that!

Didn’t I just tell you do stop doing that?

Can’t you hear me?

Don’t you understand?

Don’t do that!

Be nice to your brother.

Be nice to your brother.

Why did you break that?

No, we’re not decorating, yet.

No, we’re not decorating, yet.

No, we’re not decorating, yet.

I SAID NO!

Don’t do that!

Why did you break that?

Why did you just do that when I told you not to?

**cue alcohol**